January 2012
1 post
October 2011
0 posts
September 2011
6 posts
12 tags
Vacations
thecrippleblog:
I like traveling. It’s always nice to break out of your usual routine. Whether its seeing new places or visiting old friends, a change of pace can do wonders for your mental health. I recently went to visit my best friend for his dirty 30. My home town basically looks exactly the same so it was refreshing and nostalgic. I had a great time seeing everyone but of course I am...
August 2011
13 posts
1 tag
frageelay replied to your post: In a few hours, my wife starts work again. She…
Is there any way to get an aide through health insurance?
I’m in the process of applying for Social Security disability benefits. I’m only at stage 3 of what is universally acknowledged to be a long, tedious process.
Step 1: Apply
Step 2: Fill out tons of paperwork
Step 3: Wait. And then wait...
In a few hours, my wife starts work again. She works for the school district, so she’s had summer vacation with us, and it has been terrific. I’ve been slowly but steadily getting worse since the beginning of 2011. By the end of the school year, I was well past the limits of what I could handle.
But then summer started, and my wife was around to help, and she picked up the slack. Yay!...
4 tags
A tribute to Oracle: The story of the first Oracle...
dcwomenkickingass:
This week, in Batman Inc. #8, we saw what it is likely, after twenty two years, the final appearance of Barbara Gordon as Oracle in DC Comics for the foreseeable future.
In the New 52, Barbara Gordon will be a young woman just out of college who is once again Batgirl. She will, according to what DC has told us, still have been Oracle. She is, of course, still Barbara Gordon...
3 tags
Two-Minus-One
She said that she’d write about the Two-Minus-One article if I did too. So she did. A long time ago. And I’m just getting around to it now.
So, yes, first off: totally the woman’s right to choose. These are unusual circumstances: 2-to-1 reduction after sucessful IVF implantation. But despite the circumstances, it’s still the woman’s right to choose. There are all...
So, I also promised that I would comment on this Times piece about reducing pregnancies from twins to singletons, but before I get to that, I want to give some background about my experience of trying to become a parent (lest I have a multi-paragraph parenthetical interrupting my comments on reducing from two to one).
When my wife and I first decided to become parents, things didn’t go so...
1 tag
Best Part - Aug 13, 2011
My wife and kids have returned from a week-long camping trip today. (I did not join them as I find camping to be a generally non-wheelchair-friendly activity.) It’s been nice having the house to myself this past week (when I clean things, they stay clean!, and I can get up/go to sleep whenever I want!), but I’m really glad to have them home again.
How I know I'll likely never be happy
sharingtime:
Walking down the street this afternoon, I saw my 3rd rainbow of the week. And what was the negatively-tinged thought that went through my head at seeing this glorious gift from nature?
Gruffly, and without a tinge of sarcasm, I thought to myself:
“So many goddamn rainbows.”
This is my new motto.
“Perhaps the greatest faculty our minds possess is the ability to cope with pain....”
– Patrick Rothfuss (The Name of the Wind)
July 2011
8 posts
Username Meme
This should surprise no-one, but on the off chance that somebody hasn’t figured it out yet:
First Name: Winky, usually shortened to Wink
Last Name: Chin
Tumblr username: winkchin
Twitter username: wink
7 tags
mostly okay: More new doctors →
mostlyokay:
Packed up my MRI analyses, the discs, the blood/coagulation test reports, the lumbar puncture reports, the symptom printouts from the neuro, taking everything to go see an MS specialist today… and I can’t help feeling like I’m just starting over again. New doctors, more droning on about my symptoms, more people poring over my test results, and here’s me basically reverting back to...
2 tags
June 2011
22 posts
More Barbra Gordon/Oracle/Batgirl stuff:
Batgirl Triumphant: The Price of Restoring DC Comics’ Disabled Heroine
OP/ED: ORACLE Is Stronger Than BATGIRL Will Ever Be
6 tags
For The Chronically Screwed...: Theories. →
chronicallyscrewed:
A lot of people don’t understand how I can be so dismissive about information regarding CFS/ME. When they try to shove the newest ‘cure’ or newest ‘possible cause’ under my nose, I shrug it off. I am told that I am being negative, or that I want to stay in the dark. But really? I’m just trying to help myself out…
This too.
Birds of Prey Put Clocktower On The Market →
WANT!
A Supermodel With Lupus: Some Fighter I Am →
supermodelrevealed:
I, like most of you, wake up almost every day with pain or some strange new symptom that you fire up the computer for to Google.
Every day can be this constant struggle with your illness and the rest of your life. Guess which one is winning so far? If you guessed the rest of my life, you’re wrong.
Sometimes living with a disease doesn’t always mean you’re fighting it. I...
Change Is A Sound: On disability and visibility... →
puckett101:
In the wake of that sketch of Barbara Gordon in her Batgirl costume walking away from her wheelchair, I felt compelled to write. I ignored that compulsion until I calmed down, because most of it was frustration and anger.
I can absolutely understand why people are excited about the possibility of Barbara Gordon walking again - it’s not that they’re prejudiced or that they have...
I show up. I listen. I try to laugh.: Everytime... →
redconverse:
I thought I conquered this. I’ve been doing so damn well, and it’s summer, and I want a job and a life and NO NO NO. NO. I cannot move backwards with this. I want to be able to ride in a fucking car without hurting. I want, I want so much. Honestly, I want more than I can have. I want to do things that my disability probably won’t allow. I get my hopes up and then I crush them.
I...
3 tags
Every time I see the tag #ssm, I think to myself: What’s going on?..Sexy Sex is on Thursday, not Monday.
Map Meme
visited 30 states (60%) Create your own visited map of The United States
Driving across the country accounted for pretty much everything not on the east or west coast.
7 tags
T B R: Sweet Little Lies →
tbrookerobbins:
When living with a chronic illness, sometime’s you:
find yourself constantly lying to everyone. When someone asks how you are, it’s always “I’m fine….” or “good”. Sometimes it’s the only thing you feel you can do because you’re sick of repeating the same things over and over, especially when majority of the time you get a lot of nothing out of that explanation. Simply because...
5 tags
For The Chronically Screwed...: New Pain →
chronicallyscrewed:
‘New pain’ itself isn’t difficult to explain. It’s just pain. More pain. Pain on top of pain. But it’s effect and impact can be hard to get your head around.
The physical pain never leaves, but with time, I learn how to live with it. I develop some level of understanding. Sometimes, I figure out what causes it and perhaps even what helps it. That doesn’t mean that the pain...
3 tags
I don't know how to put this any other way, so I'm...
girl-detective:
Celsius is stupid.
Seriously. Kelvin is where it’s at. What idiot thought that negative temperatures were a good idea?!
5 tags
Stuff Sick People Have to Put Up With: Tips for... →
stuffsickpeoplehavetoputupwith:
Based on zeppogirl’s list here.
—-
Bitter, Drunk Old Man Edition:
1. BE BELLIGERENT - I cannot stress this enough. From the second you get sick, you need to LIVE YOUR LIFE WITH CAPS-LOCK ON. Remember that not only is CAPS LOCK cruise control for cool, it’s also cruise control for not dying sooner than you have to. ALL CAPS ALL THE TIME will occasionally get...
“As one of the core new features highlighted today in iOS 5, iMessages has one...”
– Apple Has Finally Stuck A Dagger Into SMS. I Love It. (via shaneguiter)
That’s great if you and all your friends and family and everyone you need/want to text has an iPhone.
But say a Congressman with an iPhone wants to send a naughty message to a girl who has an Android?
<snip>
(via...
chronicallyscrewed:
The thing about CFS/ME is that you can’t fight it. You can’t beat it. There is no competition - it’ll win every time. So you just have to sit back, allow it to drag you under and do exactly what it wants. Desperately, you cling to what is left behind and do your best to get by with that.
And that… that takes a very, very long time to get used to.
